This will be the last post that we will make to this blog site.
COTA has Landon's new web site up and running. There is a blog page on that web site that we will be posting updates to. Please follow the link to Landon's web site and register with the site to receive updates. The web site will grow and get better and better.
Landon has just turned three months old. His story has just begun and this miracle is still unfolding. We hope that everyone will continue to follow Landon's story on the new web site.
Here is the link http://www.cotaforlandonj.com/
Wednesday, July 22, 2009
Monday, July 20, 2009
Sunday's Meeting
The organizational and training meeting went well. Landon was able to attend and everyone enjoyed meeting him.
The next step is to begin organizing committees for different events and fundraisers. One of the first fundraisers will be putting out coin boxes at convenience stores and other locations. One person would be responsible for putting out as many boxes as they can handle, going back each week and collecting the money, and moving the boxes about every four weeks. I have the boxes and all the information. If you would like to help with this project please contact me. I am also looking for a couple tents or canopies to be used at the various festivals that are taking place. We will be setting up a display to give out information about COTA and Landon, setting up a big donation box, selling COTA wrist bands, maybe selling other items that might be donated to Landon's campaign, and conducting fun activities at the festivals. If you would like to participate in a festival let me know and we will make the arrangements. We will begin planning other events and can use all the help possible. If you have ideas for events or fundraisers please let me know.
We can now begin organizing in Alexander County and any other county that we have a connection to. We had to get this training meeting done, with COTA, before we could begin fundraising activities.
The next step is to begin organizing committees for different events and fundraisers. One of the first fundraisers will be putting out coin boxes at convenience stores and other locations. One person would be responsible for putting out as many boxes as they can handle, going back each week and collecting the money, and moving the boxes about every four weeks. I have the boxes and all the information. If you would like to help with this project please contact me. I am also looking for a couple tents or canopies to be used at the various festivals that are taking place. We will be setting up a display to give out information about COTA and Landon, setting up a big donation box, selling COTA wrist bands, maybe selling other items that might be donated to Landon's campaign, and conducting fun activities at the festivals. If you would like to participate in a festival let me know and we will make the arrangements. We will begin planning other events and can use all the help possible. If you have ideas for events or fundraisers please let me know.
We can now begin organizing in Alexander County and any other county that we have a connection to. We had to get this training meeting done, with COTA, before we could begin fundraising activities.
Sunday, July 19, 2009
COTA Campaign Meeting
Everyone is invited to the meeting today to begin organizing our fundraising campaign for Landon. COTA is sending a representative here to help us get organized and to do a training session. The meeting begins at two o'clock this afternoon and is at the Sparta First Baptist Church, in Sparta, NC. Call me if you need directions 336-572-9218.
Kathy and Shelly have made refreshments and someone will be there to watch children, if you need to bring them. We have made a short video, of Landon, to show at the meeting. We are also hoping that Landon will be able to make an appearance. He is here with us and got a good night's sleep so I think he will make it. This is going to be a fun and rewarding project for everyone that gets involved.
Kathy and Shelly have made refreshments and someone will be there to watch children, if you need to bring them. We have made a short video, of Landon, to show at the meeting. We are also hoping that Landon will be able to make an appearance. He is here with us and got a good night's sleep so I think he will make it. This is going to be a fun and rewarding project for everyone that gets involved.
Wednesday, July 15, 2009
Landon is in the Papers
The newspaper article about Landon was published in this week's paper and hit the stands this afternoon. We are very pleased and think the article is good. You can view the front page at this link http://www.alleghanynews.com/. Unfortunately you can't read the entire article online. If you would like a copy let me know and I will pick up extra copies and mail one to you.
We are getting excited about the meeting this Sunday. We have received another box full of goodies from COTA. We can't wait to start planning all of the fun events to raise funds for Landon.
Remember 2pm Sunday at the First Baptist Church in Sparta.
We are getting excited about the meeting this Sunday. We have received another box full of goodies from COTA. We can't wait to start planning all of the fun events to raise funds for Landon.
Remember 2pm Sunday at the First Baptist Church in Sparta.
Friday, July 10, 2009
Newspaper Article
The newspaper called and said they have the article finished and ready to be published in next week's paper. We are going by this morning to take a look at it and make sure everything is correct. It should be in Wednesday's edition of the Alleghany News.
We received a package from COTA. The package contains some of the materials we need to kick off the fundraising campaign. It also has examples of what other families have done. It's exciting and fun stuff.
I noticed that someone has made the first donation to Landon's trust fund. That's great! It's a start.
We received a package from COTA. The package contains some of the materials we need to kick off the fundraising campaign. It also has examples of what other families have done. It's exciting and fun stuff.
I noticed that someone has made the first donation to Landon's trust fund. That's great! It's a start.
Monday, July 6, 2009
Fund Raising Campaign
The date, time, and place have been set for the organizational meeting for the fund raising campaign. The meeting will be Sunday July 19th at 2 p.m. in the fellowship hall of the Sparta First Baptist Church, in Sparta NC. The church is located at 202 South Main Street in Sparta.
For Landon to get a transplant, the expected expenses for Landon's family are at least $75,000. We are not a wealthy family. We must conduct a fund raising campaign to get the money needed to make a transplant possible for Landon. We will be working with the Children's Organ Transplant Association, COTA http://www.cota.org/COTA.php . COTA is sending a lady to the organizational meeting to help us get started. The campaign to save Landon will be conducted in every county that we have any connection to or that we can organize in. We will begin in Alleghany and Alexander Counties and expand from there. I really hope that we can get some folks from Alexander to attend this first meeting. It will be of great help, when we begin to organize in Alexander, if we have a few people, from Alexander, that are familiar with COTA and what we need to do. Everyone from anywhere that is interested in helping us make a miracle for Landon is invited to attend this meeting. This meeting will be over by 4 p.m. Please mark your calender.
My goal is to not only raise the funds needed, for Landon, but to make this a fun and rewarding experience for everyone involved.
For Landon to get a transplant, the expected expenses for Landon's family are at least $75,000. We are not a wealthy family. We must conduct a fund raising campaign to get the money needed to make a transplant possible for Landon. We will be working with the Children's Organ Transplant Association, COTA http://www.cota.org/COTA.php . COTA is sending a lady to the organizational meeting to help us get started. The campaign to save Landon will be conducted in every county that we have any connection to or that we can organize in. We will begin in Alleghany and Alexander Counties and expand from there. I really hope that we can get some folks from Alexander to attend this first meeting. It will be of great help, when we begin to organize in Alexander, if we have a few people, from Alexander, that are familiar with COTA and what we need to do. Everyone from anywhere that is interested in helping us make a miracle for Landon is invited to attend this meeting. This meeting will be over by 4 p.m. Please mark your calender.
My goal is to not only raise the funds needed, for Landon, but to make this a fun and rewarding experience for everyone involved.
Sunday, July 5, 2009
Transplant Surgeons Meeting
The transplant surgical team, in Boston, took a look at Landon and had a meeting with Jeremiah and Shelly before they left Boston. They gave Jeremiah and Shelly their opinions about Landon's situation and discussed what the future might hold for Landon. They agree that Landon needs a small intestine transplant. The fact that Landon has virtually no small intestine means that Landon cannot eat and absorb nutrition. He cannot survive without intravenous feeding. His only chance at a long, some what, normal life is with a transplant. They also noted that Landon's liver is already slightly enlarged and that is likely that he will need a liver transplant as well as a small intestine transplant. They noted that we are doing everything possible to save Landon's liver and to delay a transplant as long as possible. They agree that this is the best approach. The bigger and stronger Landon is when the transplant is done the better his chance of surviving. If we can save his liver and only do a small intestine transplant and then the small intestine transplant goes bad we have the option of removing the transplant and looking for another small intestine. If his liver gets bad and we have to do a liver transplant then the option of a re transplant is not available. The surgeons then brought up this option. If Landon's liver goes bad and we have to seek a liver and small intestine transplant then we should consider doing a small intestine, liver, stomach, and pancreas transplant, all from the same donor. They stated that the survival rates seem to be better for patients that have the multivisceral transplant done.
They also discussed the research that is currently taking place. Researchers are experimenting with growing organs for transplant. We don't know what the future holds and the longer we can put off a transplant the better.
Kathy and I drove down and attended services at the Stoney Point Baptist Church with Jeremiah, Shelly, Roger, Ezekiel, and Landon, today. This is the church that Shelly's family attends. The Pastor from Stoney Point Baptist Church, Reverend Phil Addison, was with us, at Baptist Hospital, when we first learned about Landon's condition and were told that Landon was going to die. Reverend Phil prayed for Landon, that day, at Baptist Hospital. The congregation at Stoney Point Baptist Church has been praying for Landon ever since, as have dozens of churches around the country. We would like to thank each and every church and visit with each and every church. Thank you.
They also discussed the research that is currently taking place. Researchers are experimenting with growing organs for transplant. We don't know what the future holds and the longer we can put off a transplant the better.
Kathy and I drove down and attended services at the Stoney Point Baptist Church with Jeremiah, Shelly, Roger, Ezekiel, and Landon, today. This is the church that Shelly's family attends. The Pastor from Stoney Point Baptist Church, Reverend Phil Addison, was with us, at Baptist Hospital, when we first learned about Landon's condition and were told that Landon was going to die. Reverend Phil prayed for Landon, that day, at Baptist Hospital. The congregation at Stoney Point Baptist Church has been praying for Landon ever since, as have dozens of churches around the country. We would like to thank each and every church and visit with each and every church. Thank you.
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